I’m going to preface this article by saying I’m probably not the best person in the world to give anyone relationship advice. However, I do feel like a lot of other people out there — whether you have ...
Before my son was diagnosed with cystic fibrosis, my life lacked a profound sense of purpose. I did the typical routine a wife and a mom of three does. When I did have time for myself, I’d upload ...
On Dec. 18, the Fifth Circuit Court of the United States issued a decision in Texas v. United States, ruling the individual mandate unconstitutional but sending the case back down to the district ...
When your back is against the wall and there is nothing you can do except to hope and pray for a miracle, you enter a psychedelic state of mind. You become at peace with the inevitable. You begin to ...
When our son, Dean, was diagnosed with cystic fibrosis as a newborn, my husband and I were beyond overwhelmed, as most new parents would be. Once we began to wrap our heads around things, we started ...
When we think of the word family, we feel that warm and fuzzy feeling inside. We ordinarily think of our parents, maybe our siblings, grandparents, aunts ... but is that the entirety of our family?
A person living with cystic fibrosis has many important responsibilities, such as making sure they stay on top of their medications, treatments, doctor visits, and so much more. As a 20-year-old ...
From ages 5 to 20 I spent my summers at a small wilderness overnight camp in New Hampshire, and now I'm beginning to recognize the habits it instilled in me. From being open and comfortable talking ...
Cystic fibrosis doesn't define me, but I must admit it does impact most of my life in some way or another. When I started talking to my care team about transitioning a couple of years ago, it was new ...
Childhood memories can often resemble a calendar filled with birthdays and holidays. Growing up with cystic fibrosis makes childhood look more like a timeline that is marked by doctor visits and ...
When Betsy was diagnosed at 18 months, my job was to be consistent with her treatments until the day she would take these tasks on herself. We all know, that as our young children watch us, we are ...
Hey, everyone! My name is Kaitlyn and I am a 22-year-old who has cystic fibrosis. Just this past May, I graduated from Virginia Commonwealth University with my bachelor’s degree in social work. Moving ...